{"id":57,"date":"2024-05-19T16:36:19","date_gmt":"2024-05-19T14:36:19","guid":{"rendered":"https:\/\/flammes.ovh\/?page_id=57"},"modified":"2024-06-15T18:11:02","modified_gmt":"2024-06-15T16:11:02","slug":"presentation","status":"publish","type":"page","link":"https:\/\/flammes.ovh\/index.php\/presentation\/","title":{"rendered":"Pr\u00e9sentation"},"content":{"rendered":"\n
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L’ann\u00e9e de passage de mon baccalaur\u00e9at, les m\u00e9decins m’ont diagnostiqu\u00e9 une rectocolite h\u00e9morragique<\/strong> (dite “RCH”). Les crises devenant de plus en plus r\u00e9guli\u00e8res et m’imposant d’\u00eatre hospitalis\u00e9e, mes traitements ont \u00e9t\u00e9 adapt\u00e9s. Depuis, le stress et les al\u00e9as de la vie ont caus\u00e9 d’autres nombreuses crises, toutes g\u00e9r\u00e9es en quelques semaines.
Invalidante et contraignante, cette pathologie m’a fait grandir et prendre conscience de la valeur des choses.
Les sympt\u00f4mes se sont adoucis au fils des ann\u00e9es, voire ont disparu.<\/p>\n\n\n\n

Neuf ann\u00e9es plus tard, les m\u00e9decins m’ont diagnostiqu\u00e9 une seconde pathologie : la spondylarthrite ankylosante<\/strong>.
C’est ainsi que tout recommen\u00e7ait. Les rendez-vous m\u00e9dicaux hebdomadaires, les examens de contr\u00f4le, la prise d’un nouveau traitement incompatible avec la RCH.<\/p>\n\n\n\n

C’est un an apr\u00e8s cette annonce, que je vous \u00e9cris. Mes deux pathologies commencent doucement \u00e0 cohabiter dans le calme et me permettent de retrouver “une vie normale”.
Pour discuter, comprendre, apprendre et partager tant les souffrances que les petites victoires, j’ai cherch\u00e9 \u00e0 contacter des personnes atteintes de ces deux maladies, en vain. <\/p>\n\n\n\n


C’est pour cette raison qu’avec le soutien de ma famille et de mes proches, j’ai cr\u00e9\u00e9 cette association.<\/p>\n<\/div><\/div>\n\n\n\n

<\/span>
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<\/p>\n<\/div><\/div>\n\n\n\n

Et toi, quelle est ton histoire ? <\/p>\n","protected":false},"excerpt":{"rendered":"

L’ann\u00e9e de passage de mon baccalaur\u00e9at, les m\u00e9decins m’ont diagnostiqu\u00e9 une rectocolite h\u00e9morragique (dite “RCH”). Les crises devenant de plus en plus r\u00e9guli\u00e8res et m’imposant d’\u00eatre hospitalis\u00e9e, mes traitements ont […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"class_list":["post-57","page","type-page","status-publish","hentry"],"ticketed":false,"_links":{"self":[{"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/pages\/57","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/comments?post=57"}],"version-history":[{"count":12,"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/pages\/57\/revisions"}],"predecessor-version":[{"id":210,"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/pages\/57\/revisions\/210"}],"wp:attachment":[{"href":"https:\/\/flammes.ovh\/index.php\/wp-json\/wp\/v2\/media?parent=57"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}